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    23 May 2018
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    Henry is 9 years old and has a typically developing fraternal twin. Henry has microcephaly, strabismus, is visually impaired, has mild hearing impairment, mild constipation,...
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  • Featured Posts
    03 Jun 2021
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    Mirriam was born at home in July 2000 and by 18 months was noticeably developmentally delayed.  Thus began an journey that wound through Dr. Ellen...
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  • Featured Posts
    05 Mar 2019
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    Moritz came into the world in 2012 as a seemingly healthy baby. He has 3 big, healthy sisters. Even during my pregnancy I noticed that...
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Contribute to the day-to-day operations of the White Sutton Syndrome Foundation. While not glamorous,...
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Having a registry specifically for individuals with White-Sutton syndrome enables vetted researchers to have fast, secure access to useful medical data on many individuals with WHSUS. The more patients that are in our registry, the more attractive it is to potential researchers.

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We all have talents and abilities – put yours to work helping to find out more about WHSUS and helping those effected by this rare condition. The White Sutton Syndrome Foundation is brand new and needs everyone to pitch in. You can raise awareness by sharing about our website on social media. You can volunteer your time and talents to further its work. You can raise funds to contribute to our mission. In whatever way you can, please help!

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