• Featured Posts
    23 May 2018
    0
    Joel was diagnosed with a POGZ mutation in January of 2015 and ended up being one of the 5 patients mentioned in Dr. White’s initial research...
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  • Featured Posts
    23 May 2018
    2
    Eliette was diagnosed when she was 8.  We had worries early on when she was speech delayed and didn’t walk until she was two.  However,...
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  • Featured Posts
    22 May 2018
    0
    Lucy was born in 2011 via a planned c-section at 39 weeks after an unremarkable pregnancy. She was her mom’s third child at 39 years...
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Contribute to the day-to-day operations of the White Sutton Syndrome Foundation. While not glamorous,...
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Communication and Connection are Gifts.

Let's Reclaim Them Together!

Along with the rest of the world, individuals with White-Sutton syndrome have had their worlds upended by COVID-19. Our iPad Assistance program aims to help them reclaim their connections, routines and normalcy.

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We all have talents and abilities – put yours to work helping to find out more about WHSUS and helping those effected by this rare condition. The White Sutton Syndrome Foundation is brand new and needs everyone to pitch in. You can raise awareness by sharing about our website on social media. You can volunteer your time and talents to further its work. You can raise funds to contribute to our mission. In whatever way you can, please help!

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