• Featured Posts
    23 Sep 2018
    Lindsey is an almost 13-year-old girl who continues to defy odds daily. Our journey is a long one but one I feel compelled to share....
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  • Featured Posts
    05 Mar 2019
    Moritz came into the world in 2012 as a seemingly healthy baby. He has 3 big, healthy sisters. Even during my pregnancy I noticed that...
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  • Featured Posts
    23 May 2018
    Eliette was diagnosed when she was 8.  We had worries early on when she was speech delayed and didn’t walk until she was two.  However,...
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General Fund

Contribute to the day-to-day operations of the White Sutton Syndrome Foundation. While not glamorous,...
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Communication and Connection are Gifts.

Let's Reclaim Them Together!

Along with the rest of the world, individuals with White-Sutton syndrome have had their worlds upended by COVID-19. Our iPad Assistance program aims to help them reclaim their connections, routines and normalcy.

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Volunteer, Raise Awareness, Raise Funds...

We all have talents and abilities – put yours to work helping to find out more about WHSUS and helping those effected by this rare condition. The White Sutton Syndrome Foundation is brand new and needs everyone to pitch in. You can raise awareness by sharing about our website on social media. You can volunteer your time and talents to further its work. You can raise funds to contribute to our mission. In whatever way you can, please help!

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