The White Sutton Syndrome Foundation is a group of parents, family, caregivers, doctors and individuals effected by WHSUS who want to make a difference for these special people and those who care about them.
We all have talents and abilities – put yours to work helping to find out more about WHSUS and helping those effected by this rare condition. The White Sutton Syndrome Foundation is brand new and needs everyone to pitch in. You can raise awareness by sharing about our website on social media. You can volunteer your time and talents to further its work. You can raise funds to contribute to our mission. In whatever way you can, please help!
Do you have a child with White Sutton Syndrome? Join our private parents’ community on Facebook & network with other WHSUS families, ask burning questions and get support from those who understand what you’re going through.
Stay informed about new research, upcoming events and other foundation updates. Don’t miss things!
Registration for Our Conference is Now Open!