• Featured Posts
    23 May 2018
    Eliette was diagnosed when she was 8.  We had worries early on when she was speech delayed and didn’t walk until she was two.  However,...
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  • Featured Posts
    08 Jul 2019
    Before I tell the story of our daughter Marlies, we would like to thank all parents who share their experiences with us. We are also...
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  • Featured Posts
    17 Jun 2018
    Before Ehran diagnosis in 2016, we searched long and hard to answer questions of why Ehran wasn’t developing at the rate of his peers. At...
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Communication and Connection are Gifts.

Let's Reclaim Them Together!

Along with the rest of the world, individuals with White-Sutton syndrome have had their worlds upended by COVID-19. Our iPad Assistance program aims to help them reclaim their connections, routines and normalcy.

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We all have talents and abilities – put yours to work helping to find out more about WHSUS and helping those effected by this rare condition. The White Sutton Syndrome Foundation is brand new and needs everyone to pitch in. You can raise awareness by sharing about our website on social media. You can volunteer your time and talents to further its work. You can raise funds to contribute to our mission. In whatever way you can, please help!

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