• Featured Posts
    23 Sep 2018
    Lindsey is an almost 13-year-old girl who continues to defy odds daily. Our journey is a long one but one I feel compelled to share....
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  • Featured Posts
    31 May 2018
    Rylee was born in 2016 and was air-flighted to a nearby children’s hospital after not latching/eating for 3 days, which doctors labeled as a failure...
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  • Featured Posts
    22 May 2018
    Lucy was born in 2011 via a planned c-section at 39 weeks after an unremarkable pregnancy. She was her mom’s third child at 39 years...
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Contribute to the day-to-day operations of the White Sutton Syndrome Foundation. While not glamorous,...
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Communication and Connection are Gifts.

Let's Reclaim Them Together!

Along with the rest of the world, individuals with White-Sutton syndrome have had their worlds upended by COVID-19. Our iPad Assistance program aims to help them reclaim their connections, routines and normalcy.

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Volunteer, Raise Awareness, Raise Funds...

We all have talents and abilities – put yours to work helping to find out more about WHSUS and helping those effected by this rare condition. The White Sutton Syndrome Foundation is brand new and needs everyone to pitch in. You can raise awareness by sharing about our website on social media. You can volunteer your time and talents to further its work. You can raise funds to contribute to our mission. In whatever way you can, please help!

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