• Featured Causes
    As with any medical condition, funding is needed to do research. Since WHSUS is such a new and relatively rare condition, it’s needed even more...
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  • Featured Causes
    We are working on organizing a conference in Dallas in the summer of 2019. Once there, those with WHSUS and their families, friends and doctors...
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  • Featured Causes
    Treating WHSUS can be expensive and isn’t always covered by insurance. Your donation will help us advocate for patients and will support us as we...
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Urgent Need

Conference

We are working on organizing a conference in Dallas in the summer of 2019....
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The White Sutton Syndrome Foundation

Who are we?

The White Sutton Syndrome Foundation is a group of parents, family, caregivers, doctors and individuals effected by WHSUS who want to make a difference for these special people and those who care about them.

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We need your help

Volunteer, Raise Awareness, Raise Funds...

We all have talents and abilities – put yours to work helping to find out more about WHSUS and helping those effected by this rare condition. The White Sutton Syndrome Foundation is brand new and needs everyone to pitch in. You can raise awareness by sharing about our website on social media. You can volunteer your time and talents to further its work. You can raise funds to contribute to our mission. In whatever way you can, please help!

How Can I Help?

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Do you have a child with White Sutton Syndrome? Join our private parents’ community on Facebook & network with other WHSUS families, ask burning questions and get support from those who understand what you’re going through.

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