Mirriam’s Story
Mirriam was born at home in July 2000 and by 18 months was noticeably developmentally delayed. Thus began an journey... Read More
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General Fund
Contribute to the day-to-day operations of the White Sutton Syndrome Foundation. While not glamorous,... Read More
Let's Get Researchers' Attention.
Please Join Our Patient Registry.
Having a registry specifically for individuals with White-Sutton syndrome enables vetted researchers to have fast, secure access to useful medical data on many individuals with WHSUS. The more patients that are in our registry, the more attractive it is to potential researchers.
We need your help
Volunteer, Raise Awareness, Raise Funds...
We all have talents and abilities – put yours to work helping to find out more about WHSUS and helping those effected by this rare condition. The White Sutton Syndrome Foundation is brand new and needs everyone to pitch in. You can raise awareness by sharing about our website on social media. You can volunteer your time and talents to further its work. You can raise funds to contribute to our mission. In whatever way you can, please help!
Recent Articles
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Emma’s Story
Emma graced this world upon her entry in 2008. In spite of her rough start in life, she was a... Read More
Marlies’s Story
Before I tell the story of our daughter Marlies, we would like to thank all parents who share their experiences... Read More
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Do you have a child with White Sutton Syndrome? Join our private parents’ community on Facebook & network with other WHSUS families, ask burning questions and get support from those who understand what you’re going through.
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