Toilet Training with White Sutton Syndrome
Toilet training is a daunting undertaking in the best of circumstances. For those of us with children who have White... Read More
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Conference
We are working on organizing a conference in Dallas in the summer of 2019.... Read More
The White Sutton Syndrome Foundation
Who are we?
The White Sutton Syndrome Foundation is a group of parents, family, caregivers, doctors and individuals effected by WHSUS who want to make a difference for these special people and those who care about them.
We need your help
Volunteer, Raise Awareness, Raise Funds...
We all have talents and abilities – put yours to work helping to find out more about WHSUS and helping those effected by this rare condition. The White Sutton Syndrome Foundation is brand new and needs everyone to pitch in. You can raise awareness by sharing about our website on social media. You can volunteer your time and talents to further its work. You can raise funds to contribute to our mission. In whatever way you can, please help!
Recent Articles
Read Our Blog 
Standard Tests After a Diagnosis
Last week, we asked for you to submit questions that you had about White Sutton Syndrome (WHSUS) for which you... Read More
Burning White Sutton Questions?
When we first found out that our son had a POGZ mutation, we had a thousand questions. At the time,... Read More
Join Our Community
Do you have a child with White Sutton Syndrome? Join our private parents’ community on Facebook & network with other WHSUS families, ask burning questions and get support from those who understand what you’re going through.
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Stay informed about new research, upcoming events and other foundation updates. Don’t miss things!