• Featured Posts
    03 Jun 2021
    Mirriam was born at home in July 2000 and by 18 months was noticeably developmentally delayed.  Thus began an journey that wound through Dr. Ellen...
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  • Featured Posts
    14 Jun 2020
    Emma graced this world upon her entry in 2008. In spite of her rough start in life, she was a determined baby! She was failure...
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  • Featured Posts
    17 Jun 2018
    Before Ehran diagnosis in 2016, we searched long and hard to answer questions of why Ehran wasn’t developing at the rate of his peers. At...
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Contribute to the day-to-day operations of the White Sutton Syndrome Foundation. While not glamorous,...
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Please Join Our Patient Registry.

Having a registry specifically for individuals with White-Sutton syndrome enables vetted researchers to have fast, secure access to useful medical data on many individuals with WHSUS. The more patients that are in our registry, the more attractive it is to potential researchers.

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We all have talents and abilities – put yours to work helping to find out more about WHSUS and helping those effected by this rare condition. The White Sutton Syndrome Foundation is brand new and needs everyone to pitch in. You can raise awareness by sharing about our website on social media. You can volunteer your time and talents to further its work. You can raise funds to contribute to our mission. In whatever way you can, please help!

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