• Featured Posts
    23 May 2018
    Joel was diagnosed with a POGZ mutation in January of 2015 and ended up being one of the 5 patients mentioned in Dr. White’s initial research...
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  • Featured Posts
    05 Mar 2019
    Moritz came into the world in 2012 as a seemingly healthy baby. He has 3 big, healthy sisters. Even during my pregnancy I noticed that...
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  • Featured Posts
    31 May 2018
    Rylee was born in 2016 and was air-flighted to a nearby children’s hospital after not latching/eating for 3 days, which doctors labeled as a failure...
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Contribute to the day-to-day operations of the White Sutton Syndrome Foundation. While not glamorous,...
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The White Sutton Syndrome Foundation

Who are we?

The White Sutton Syndrome Foundation is a group of parents, family, caregivers, doctors and individuals effected by WHSUS who want to make a difference for these special people and those who care about them.

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We need your help

Volunteer, Raise Awareness, Raise Funds...

We all have talents and abilities – put yours to work helping to find out more about WHSUS and helping those effected by this rare condition. The White Sutton Syndrome Foundation is brand new and needs everyone to pitch in. You can raise awareness by sharing about our website on social media. You can volunteer your time and talents to further its work. You can raise funds to contribute to our mission. In whatever way you can, please help!

How Can I Help?

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Do you have a child with White Sutton Syndrome? Join our private parents’ community on Facebook & network with other WHSUS families, ask burning questions and get support from those who understand what you’re going through.

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