Cyclic Vomiting? This May Help.
A trend has been emerging in the White Sutton Syndrome (WHSUS) community recently. Caregivers have indicated that quite a few individuals with WHSUS also struggle... Read More
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Lindsey’s Story
Lindsey is an almost 13-year-old girl who continues to defy odds daily. Our journey is a long one but one I feel compelled to share.... Read More
Rare Disease Genetic Testing Webinar
Many White Sutton families have already gone through the process of genetic testing for WHSUS, but many more are still only just beginning the process.... Read More
Study Opportunity for White Sutton Families
UPDATE: This study is no longer accepting applicants. We have recently been made aware that Dr. Sutton and one of his associates, Dr. Nurit Batzir,... Read More
Toilet Training with White Sutton Syndrome
Toilet training is a daunting undertaking in the best of circumstances. For those of us with children who have White Sutton Syndrome (WHSUS), it can... Read More
Standard Tests After a Diagnosis
Last week, we asked for you to submit questions that you had about White Sutton Syndrome (WHSUS) for which you didn’t already have an answer.... Read More
Ehran’s Story
Before Ehran diagnosis in 2016, we searched long and hard to answer questions of why Ehran wasn’t developing at the rate of his peers. At... Read More
Genetics Home Reference: Updated!
After several weeks of working with the staff of the Genetics Home Reference, Dr. Reid Sutton today announced that its entry for White Sutton Syndrome... Read More
