Lindsey’s Story
Lindsey is an almost 13-year-old girl who continues to defy odds daily. Our journey is a long one but one I feel compelled to share.... Read More
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Rare Disease Genetic Testing Webinar
Many White Sutton families have already gone through the process of genetic testing for WHSUS, but many more are still only just beginning the process.... Read More
Study Opportunity for White Sutton Families
We have recently been made aware that Dr. Sutton and one of his associates, Dr. Nurit Batzir, are looking for study participants for research into... Read More
Toilet Training with White Sutton Syndrome
Toilet training is a daunting undertaking in the best of circumstances. For those of us with children who have White Sutton Syndrome (WHSUS), it can... Read More
Standard Tests After a Diagnosis
Last week, we asked for you to submit questions that you had about White Sutton Syndrome (WHSUS) for which you didn’t already have an answer.... Read More
Ehran’s Story
Before Ehran diagnosis in 2016, we searched long and hard to answer questions of why Ehran wasn’t developing at the rate of his peers. At... Read More
Genetics Home Reference: Updated!
After several weeks of working with the staff of the Genetics Home Reference, Dr. Reid Sutton today announced that its entry for White Sutton Syndrome... Read More
Burning White Sutton Questions?
When we first found out that our son had a POGZ mutation, we had a thousand questions. At the time, we knew nothing about genetics... Read More
