Meeting of the Moms
I have amazing friends. I do. They are generous and encouraging. They willingly overlook the many times I ignore their text messages and cancel plans. My friends... Read More
- Blog
Articles
News
Blog
Moritz’s Story
Moritz came into the world in 2012 as a seemingly healthy baby. He has 3 big, healthy sisters. Even during my pregnancy I noticed that... Read More
Cyclic Vomiting? This May Help.
A trend has been emerging in the White Sutton Syndrome (WHSUS) community recently. Caregivers have indicated that quite a few individuals with WHSUS also struggle... Read More
Lindsey’s Story
Lindsey is an almost 13-year-old girl who continues to defy odds daily. Our journey is a long one but one I feel compelled to share.... Read More
Rare Disease Genetic Testing Webinar
Many White Sutton families have already gone through the process of genetic testing for WHSUS, but many more are still only just beginning the process.... Read More
Study Opportunity for White Sutton Families
UPDATE: This study is no longer accepting applicants. We have recently been made aware that Dr. Sutton and one of his associates, Dr. Nurit Batzir,... Read More
Toilet Training with White Sutton Syndrome
Toilet training is a daunting undertaking in the best of circumstances. For those of us with children who have White Sutton Syndrome (WHSUS), it can... Read More
Standard Tests After a Diagnosis
Last week, we asked for you to submit questions that you had about White Sutton Syndrome (WHSUS) for which you didn’t already have an answer.... Read More
