Mirriam’s Story
Mirriam was born at home in July 2000 and by 18 months was noticeably developmentally delayed. Thus began an journey that wound through Dr. Ellen... Read More
- Blog
Articles
News
Blog
Announcing Our 2020 iPad Assistance Program!
These are difficult times. It’s unlikely that there are many who are unaffected by the COVID-19 crisis. As a foundation, we have had to postpone... Read More
Emma’s Story
Emma graced this world upon her entry in 2008. In spite of her rough start in life, she was a determined baby! She was failure... Read More
COVID-19 Webinar for Those with Rare Diseases
Like the rest of the world, White Sutton families are struggling with the consequences of the COVID-19 outbreak. But the challenges faced by those with... Read More
Patient Registry Plans
Update (02/18/2020): We’ve officially launched our patient registry! If you’re interested in participating, you can begin the process here. Update: We’ve selected our patient registry... Read More
Marlies’s Story
Before I tell the story of our daughter Marlies, we would like to thank all parents who share their experiences with us. We are also... Read More
Non-Profit Status Update
It is with great excitement we share with you that our organization, The White Sutton Syndrome (WHSUS) Foundation, is now an official 501(c)(3) organization! What... Read More
Meeting of the Moms
I have amazing friends. I do. They are generous and encouraging. They willingly overlook the many times I ignore their text messages and cancel plans. My friends... Read More
