POGZcast 2: Meet the Doctors
Episode 2 of the POGZcast! In this episode, Josh and Mandy talk to doctors Jansen White and V. Reid Sutton. These doctors... Read More
POGZcast 1: Why POGZcast Exists
The inaugural episode of the POGZcast. In this episode, Josh and Mandy introduce themselves, talk about what White-Sutton syndrome is, talk foundation... Read More
Bryson’s Story
Bryson is 13 years old and was diagnosed with WHSUS in the fall of 2023. He was born at 34 weeks and... Read More
Mirriam’s Story
Mirriam was born at home in July 2000 and by 18 months was noticeably developmentally delayed. Thus began an journey that wound... Read More
Emma’s Story
Emma graced this world upon her entry in 2008. In spite of her rough start in life, she was a determined baby!... Read More
Marlies’s Story
Before I tell the story of our daughter Marlies, we would like to thank all parents who share their experiences with us.... Read More
Meeting of the Moms
I have amazing friends. I do. They are generous and encouraging. They willingly overlook the many times I ignore their text messages and cancel... Read More
Cyclic Vomiting? This May Help.
A trend has been emerging in the White Sutton Syndrome (WHSUS) community recently. Caregivers have indicated that quite a few individuals with... Read More
Toilet Training with White Sutton Syndrome
Toilet training is a daunting undertaking in the best of circumstances. For those of us with children who have White Sutton Syndrome... Read More
Standard Tests After a Diagnosis
Last week, we asked for you to submit questions that you had about White Sutton Syndrome (WHSUS) for which you didn’t already... Read More