White Sutton Syndrome Foundation Story Archives - White Sutton Syndrome Foundation

Mirriam was born at home in July 2000 and by 18 months was noticeably developmentally delayed. Thus began an journey that wound...

Emma graced this world upon her entry in 2008. In spite of her rough start in life, she was a determined baby!...

Before I tell the story of our daughter Marlies, we would like to thank all parents who share their experiences with us....

Moritz came into the world in 2012 as a seemingly healthy baby. He has 3 big, healthy sisters. Even during my pregnancy...

Lindsey is an almost 13-year-old girl who continues to defy odds daily. Our journey is a long one but one I feel...

Before Ehran diagnosis in 2016, we searched long and hard to answer questions of why Ehran wasn’t developing at the rate of...

Rylee was born in 2016 and was air-flighted to a nearby children’s hospital after not latching/eating for 3 days, which doctors labeled...

Eliette was diagnosed when she was 8. We had worries early on when she was speech delayed and didn’t walk until she...

Henry is 9 years old and has a typically developing fraternal twin. Henry has microcephaly, strabismus, is visually impaired, has mild hearing...

Joel was diagnosed with a POGZ mutation in January of 2015 and ended up being one of the 5 patients mentioned in Dr....

Story