Treating WHSUS can be expensive and isn’t always covered by insurance. Your donation will help us advocate for patients and will support us as we strive to improve their quality of life by meeting their medical needs.
Thank you for visiting our website! The White Sutton Syndrome Foundation is a group of parents, practitioners, family and friends with a shared mission. We strive to build a community that will improve the quality of life for those diagnosed with White Sutton Syndrome and their families, to educate others about this condition and to fund research in order to better understand its symptoms, treatments and prognosis.
Registration for Our Conference is Now Open!