White Sutton Syndrome Foundation Blog - White Sutton Syndrome Foundation

I have amazing friends. I do. They are generous and encouraging. They willingly overlook the many times I ignore their text messages and cancel plans. My friends...

Moritz’s Story

05 Mar 2019

Josh Couch

Moritz came into the world in 2012 as a seemingly healthy baby. He has 3 big, healthy sisters. Even during my pregnancy I noticed that...

Cyclic Vomiting? This May Help.

01 Dec 2018

Josh Couch

A trend has been emerging in the White Sutton Syndrome (WHSUS) community recently. Caregivers have indicated that quite a few individuals with WHSUS also struggle...

Lindsey’s Story

23 Sep 2018

Josh Couch

Lindsey is an almost 13-year-old girl who continues to defy odds daily. Our journey is a long one but one I feel compelled to share....

Rare Disease Genetic Testing Webinar

08 Aug 2018

Josh Couch

Many White Sutton families have already gone through the process of genetic testing for WHSUS, but many more are still only just beginning the process....

Study Opportunity for White Sutton Families

21 Jul 2018

Josh Couch

UPDATE: This study is no longer accepting applicants. We have recently been made aware that Dr. Sutton and one of his associates, Dr. Nurit Batzir,...

Toilet Training with White Sutton Syndrome

30 Jun 2018

Josh Couch

Toilet training is a daunting undertaking in the best of circumstances. For those of us with children who have White Sutton Syndrome (WHSUS), it can...