Emma’s Story
Emma graced this world upon her entry in 2008. In spite of her rough start in life, she was a determined baby! She was failure... Read More
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COVID-19 Webinar for Those with Rare Diseases
Like the rest of the world, White Sutton families are struggling with the consequences of the COVID-19 outbreak. But the challenges faced by those with... Read More
Patient Registry Plans
Update (02/18/2020): We’ve officially launched our patient registry! If you’re interested in participating, you can begin the process here. Update: We’ve selected our patient registry... Read More
Marlies’s Story
Before I tell the story of our daughter Marlies, we would like to thank all parents who share their experiences with us. We are also... Read More
Non-Profit Status Update
It is with great excitement we share with you that our organization, The White Sutton Syndrome (WHSUS) Foundation, is now an official 501(c)(3) organization! What... Read More
Meeting of the Moms
I have amazing friends. I do. They are generous and encouraging. They willingly overlook the many times I ignore their text messages and cancel plans. My friends... Read More
Moritz’s Story
Moritz came into the world in 2012 as a seemingly healthy baby. He has 3 big, healthy sisters. Even during my pregnancy I noticed that... Read More
Cyclic Vomiting? This May Help.
A trend has been emerging in the White Sutton Syndrome (WHSUS) community recently. Caregivers have indicated that quite a few individuals with WHSUS also struggle... Read More
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