Ehran’s Story
Before Ehran diagnosis in 2016, we searched long and hard to answer questions of why Ehran wasn’t developing at the rate of his peers. At... Read More
- Blog
Articles
News
Blog
Genetics Home Reference: Updated!
After several weeks of working with the staff of the Genetics Home Reference, Dr. Reid Sutton today announced that its entry for White Sutton Syndrome... Read More
Burning White Sutton Questions?
When we first found out that our son had a POGZ mutation, we had a thousand questions. At the time, we knew nothing about genetics... Read More
What Is De Novo, and Why Does It Matter?
It’s strange how something that that matters so little when looked at from an objective point of view can matter so much when it’s personal.... Read More
White Sutton Website Launch Livestream
Watch the official launch of the White Sutton Syndrome Foundation’s new website live on Facebook on June 4th, 2018 at 6:30 p.m. CDT!
Rylee’s Story
Rylee was born in 2016 and was air-flighted to a nearby children’s hospital after not latching/eating for 3 days, which doctors labeled as a failure... Read More
Eliette’s Story
Eliette was diagnosed when she was 8. We had worries early on when she was speech delayed and didn’t walk until she was two. However,... Read More
Henry’s Story
Henry is 9 years old and has a typically developing fraternal twin. Henry has microcephaly, strabismus, is visually impaired, has mild hearing impairment, mild constipation,... Read More
