White Sutton Syndrome Foundation Blog - White Sutton Syndrome Foundation

Lindsey is an almost 13-year-old girl who continues to defy odds daily. Our journey is a long one but one I feel compelled to share....

Rare Disease Genetic Testing Webinar

08 Aug 2018

Josh Couch

Many White Sutton families have already gone through the process of genetic testing for WHSUS, but many more are still only just beginning the process....

Study Opportunity for White Sutton Families

21 Jul 2018

Josh Couch

UPDATE: This study is no longer accepting applicants. We have recently been made aware that Dr. Sutton and one of his associates, Dr. Nurit Batzir,...

Toilet Training with White Sutton Syndrome

30 Jun 2018

Josh Couch

Toilet training is a daunting undertaking in the best of circumstances. For those of us with children who have White Sutton Syndrome (WHSUS), it can...

Standard Tests After a Diagnosis

18 Jun 2018

Josh Couch

Last week, we asked for you to submit questions that you had about White Sutton Syndrome (WHSUS) for which you didn’t already have an answer....

Ehran’s Story

17 Jun 2018

Josh Couch

Before Ehran diagnosis in 2016, we searched long and hard to answer questions of why Ehran wasn’t developing at the rate of his peers. At...

Genetics Home Reference: Updated!

13 Jun 2018

Josh Couch

After several weeks of working with the staff of the Genetics Home Reference, Dr. Reid Sutton today announced that its entry for White Sutton Syndrome...