Ehran’s Story
Before Ehran diagnosis in 2016, we searched long and hard to answer questions of why Ehran wasn’t developing at the rate of his peers. At... Read More
Thank you for visiting our website! The White Sutton Syndrome Foundation is a group of parents, practitioners, family and friends with a shared mission. We strive to build a community that will improve the quality of life for those diagnosed with White Sutton Syndrome and their families, to educate others about this condition and to fund research in order to better understand its symptoms, treatments and prognosis.