Joel’s Story
Joel was diagnosed with a POGZ mutation in January of 2015 and ended up being one of the 5 patients mentioned in Dr. White’s initial research... Read More
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Lucy’s Story
Lucy was born in 2011 via a planned c-section at 39 weeks after an unremarkable pregnancy. She was her mom’s third child at 39 years... Read More
Home Genetic Testing: Is It For Me?
I have an admission to make: I am a cheap skate. Whenever purchasing something online, I always look for the cheapest place to get it. I’m... Read More
Social Media Accounts are Live!
White Sutton Syndrome Foundation now has a presence on social media! You can join the WHSUS community on Facebook, Twitter and Instagram today! Look for... Read More
White Sutton Foundation Logo
Our logo is done! Thanks to everyone who has provided feedback. Here’s the backstory behind it’s several meanings. The brain represents the neurological delays most... Read More
WhiteSutton.org: Work is Underway!
Our journey has begun! The domain is purchased and development has begun on whitesutton.org. Thank you to everyone who has offered words of encouragement, opinions,... Read More
