Joel’s Story
Joel was diagnosed with a POGZ mutation in January of 2015 and ended up being one of the 5 patients mentioned in Dr. White’s initial research... Read More
Thank you for visiting our website! The White Sutton Syndrome Foundation is a group of parents, practitioners, family and friends with a shared mission. We strive to build a community that will improve the quality of life for those diagnosed with White Sutton Syndrome and their families, to educate others about this condition and to fund research in order to better understand its symptoms, treatments and prognosis.