Many White Sutton families have already gone through the process of genetic testing for WHSUS, but many more are still only just beginning the process. Many are still out there looking for answers, and may come across whitesutton.org during their search. If this is you, or if you’re interested in finding out more about genetic testing as it relates to rare diseases, NORD is hosting a free webinar you may be interested in!
On Wednesday, August 22nd, Dr. Debra Regier will host a webinar that will offer an overview of the different types of genetic tests, indications for their use, and their benefits and limitations. Dr. Regier is involved in educating the next generation of rare disease clinicians a chief investigator for the Rare Disease Clinical Research Scholar’s Program. She is also a member of the National Organization for Rare Disorders’ education committee.