MENUMENU

What Is It?
About
Research
- Patient Registry
- Research
Blog
- Articles
  Mirriam’s Story
  03 Jun 2021
  Emma’s Story
  14 Jun 2020
  Marlies’s Story
  08 Jul 2019
- News
  POGZ gene boosts DNA accessibility during development
  12 Jan 2022
  Announcing Our 2020 iPad Assistance Program!
  15 Jun 2020
  COVID-19 Webinar for Those with Rare Diseases
  24 Mar 2020
Community
Products
Donate

0 items - $0.00

MENUMENU

What Is It?
About
Research
- Patient Registry
- Research
Blog
- Articles
  Mirriam’s Story
  03 Jun 2021
  Emma’s Story
  14 Jun 2020
  Marlies’s Story
  08 Jul 2019
- News
  POGZ gene boosts DNA accessibility during development
  12 Jan 2022
  Announcing Our 2020 iPad Assistance Program!
  15 Jun 2020
  COVID-19 Webinar for Those with Rare Diseases
  24 Mar 2020
Community
Products
Donate

Watch Our Website Launch Event

White Sutton Website Launch Livestream

Watch the official launch of the White Sutton Syndrome Foundation’s new website live on Facebook on June 4th, 2018 at 6:30 p.m. CDT!

Social Media Accounts are Live!

Genetics Home Reference: Updated!

Leave a Comment Cancel reply

This site uses Akismet to reduce spam. Learn how your comment data is processed.

From Our Board…

Thank you for visiting our website! The White Sutton Syndrome Foundation is a group of parents, practitioners, family and friends with a shared mission. We strive to build a community that will improve the quality of life for those diagnosed with White Sutton Syndrome and their families, to educate others about this condition and to fund research in order to better understand its symptoms, treatments and prognosis.

Popular Posts

Study Opportunity for White Sutton Families

Patient Registry Plans

COVID-19 Webinar for Those with Rare Diseases

White Sutton Stories

Mirriam’s Story
Emma’s Story
Marlies’s Story

Foundation Needs

Rockville RPG2X10 Package PA System Mixe...

Rockville RPG2X10 Package PA System Mixer/Amp+10" Speakers+Stands+Mics+Bluetooth

$289.95

MIFFLIN Plastic Waterproof ID Badge Hold...

MIFFLIN Plastic Waterproof ID Badge Holders (Clear, 3.5x2.25 Inch, 100 Pack), Vertical Hanging Name Card Holder with Zipper, Resealable Bulk Nametag Holders

$13.99

MIFFLIN Flat Lanyards for ID Badges (Ora...

MIFFLIN Flat Lanyards for ID Badges (Orange, 36 Inch, 100 Pack), Comfortable Neck Straps

$18.99

Archives

January 2022
June 2021
June 2020
March 2020
August 2019
July 2019
March 2019
December 2018
September 2018
August 2018
July 2018
June 2018
May 2018
March 2018

Contact Information

918.884.7125

contact@whitesutton.org

Address : PO Box 591
Broken Arrow, OK 74103

For Parents

Newly Diagnosed
Diagnosis & Treatment
Resources
Community

For Professionals

Recommended Reading
Suggest an Article for Inclusion
Connect with the Foundation
Join Our Advisory Board

For Supporters

Buy Products
Make a Donation

Login / Register

© , White Sutton Syndrome Foundation. Privacy Policy

This website uses cookies to improve your experience. We'll assume you're ok with this, but you can opt-out if you wish.Accept Read More

Privacy & Cookies Policy

Privacy Overview

This website uses cookies to improve your experience while you navigate through the website. Out of these, the cookies that are categorized as necessary are stored on your browser as they are essential for the working of basic functionalities of the website. We also use third-party cookies that help us analyze and understand how you use this website. These cookies will be stored in your browser only with your consent. You also have the option to opt-out of these cookies. But opting out of some of these cookies may affect your browsing experience.

Necessary

Always Enabled

Necessary cookies are absolutely essential for the website to function properly. This category only includes cookies that ensures basic functionalities and security features of the website. These cookies do not store any personal information.

Non-necessary

Any cookies that may not be particularly necessary for the website to function and is used specifically to collect user personal data via analytics, ads, other embedded contents are termed as non-necessary cookies. It is mandatory to procure user consent prior to running these cookies on your website.

SAVE & ACCEPT