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MENUMENU

What Is It?
About
Research
- Patient Registry
- Research
Blog
- Articles
  Mirriam’s Story
  03 Jun 2021
  Emma’s Story
  14 Jun 2020
  Marlies’s Story
  08 Jul 2019
- News
  POGZ gene boosts DNA accessibility during development
  12 Jan 2022
  Announcing Our 2020 iPad Assistance Program!
  15 Jun 2020
  COVID-19 Webinar for Those with Rare Diseases
  24 Mar 2020
Community
Products
Donate

Watch Our Website Launch Event

White Sutton Website Launch Livestream

Watch the official launch of the White Sutton Syndrome Foundation’s new website live on Facebook on June 4th, 2018 at 6:30 p.m. CDT!

Social Media Accounts are Live!

Genetics Home Reference: Updated!

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From Our Board…

Thank you for visiting our website! The White Sutton Syndrome Foundation is a group of parents, practitioners, family and friends with a shared mission. We strive to build a community that will improve the quality of life for those diagnosed with White Sutton Syndrome and their families, to educate others about this condition and to fund research in order to better understand its symptoms, treatments and prognosis.

Popular Posts

Study Opportunity for White Sutton Families

POGZ gene boosts DNA accessibility during development

WhiteSutton.org: Work is Underway!

White Sutton Stories

Mirriam’s Story
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