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White Sutton Syndrome Community
There are several communities outside of this website that the White Sutton Syndrome Foundation is involved in. We administer a private Facebook group specifically for parents of children with White Sutton Syndrome. We also administer a community on RareConnect, which is a forum where rare disease families, doctors and researchers can communicate.
Add It To Your CalendarJanuary 6th, 2016 is the day that Janson White’s initial research paper, POGZ truncating alleles cause syndromic intellectual disability was published. Because of this, we have designated January 6th each year as White Sutton Day. This is our “anniversary” – the day that the condition effecting our loved ones became officially recognized.
This is a day to reach out to those around you and tell them about White Sutton Syndrome. Raise awareness, raise funds, promote more and better research…basically a day to help us in our mission!
Stay tuned for more. We’ll be sure to provide you with images you can use on social media, discounts and special items you can buy in the store and you can bet that we’ll have a fundraising push you can promote too.