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White Sutton Syndrome Community
Looking to plug into a vibrant support community? The White Sutton Syndrome Foundation administers a private Facebook group with over 500 members specifically for parents and caregivers of individuals with White Sutton Syndrome. This community is one of the greatest resources we have to offer: support, advice, empathy and friendship? You’ll find all that here.
Add It To Your CalendarJanuary 6th, 2016 is the day that Janson White’s initial research paper, POGZ truncating alleles cause syndromic intellectual disability was published. Because of this, we have designated January 6th each year as White Sutton Day. This is our “anniversary” – the day that the condition affecting our loved ones became officially recognized.
This is a day to reach out to those around you and tell them about White Sutton Syndrome. Raise awareness, raise funds, promote more and better research…basically a day to help us in our mission!
IT'S COMING SOON!
Posts to share to raise awareness can be found on social media by searching for #WHSUSDay, and please create your own White Sutton Syndrome posts using the same hashtag. Follow us on social media for the latest updates!