White Sutton Syndrome Community

There are several communities outside of this website that the White Sutton Syndrome Foundation is involved in. We administer a private Facebook group specifically for parents of children with White Sutton Syndrome. We also administer a community on RareConnect, which is a forum where rare disease families, doctors and researchers can communicate.

White Sutton Day is January 6th

 Add It To Your CalendarJanuary 6th, 2016 is the day that Janson White’s initial research paper, POGZ truncating alleles cause syndromic intellectual disability was published. Because of this, we have designated January 6th each year as White Sutton Day. This is our “anniversary” – the day that the condition affecting our loved ones became officially recognized.

This is a day to reach out to those around you and tell them about White Sutton Syndrome. Raise awareness, raise funds, promote more and better research…basically a day to help us in our mission!


Posts to share to raise awareness can be found on social media by searching for #WHSUSDay, and please create your own White Sutton Syndrome posts using the same hashtag. Follow us on social media for the latest updates!