Stories from White Sutton Families

We’ve found that sharing our stories can be both therapeutic to those sharing and helpful to the families of those with White Sutton Syndrome. Stories help families understand they’re not alone and connect with families whose experiences are most like their own. Do you have a loved one with White Sutton Syndrome? You can share their story too, and help others dealing with WHSUS see that they’re not alone,

We completely respect the privacy of those submitting stories. Submissions are completely voluntary, and all submissions are edited to remove last names and locations that might reveal the individuals’ exact identities. Parents can request that their child’s story be edited or removed at any time. The White Sutton Syndrome Foundation makes every effort to verify the validity of stories posted here, but cannot guarantee all facts presented and makes no claims as to their accuracy.