We are aware of Coronavirus concerns and have been monitoring the situation. White Sutton Together has been postponed. More details will be coming soon.

White Sutton Together is a conference specifically for individuals who have been diagnosed with White-Sutton syndrome, as well as their families and caregivers. The 2020 conference will be held in Houston, Texas at the Texas Children’s Hospital Women’s Pavilion on July 24-26. It will feature relevant speakers, networking opportunities and activities intended to foster relationships and community-building. Meet other affected families, hear presentations from relevant medical professionals and members of the WHSUS community, and build relationships during planned activities and outings. Currently, we have 68 attendees registered – below is all the information you will need to become an attendee as well!


$25 $15






The White Sutton Together 2020 Conference will be held at the world-renowned Texas Children’s Hospital. We have arranged meeting rooms in the Pavilion for Women, directly across from our host hotel, the Hilton Houston Plaza/Medical Center. The sessions on Saturday will be hosted there. Our thanks go out to both the Texas Children’s Hospital and the Baylor College of Medicine for their kind hospitality!
See the Map

Friday, July 24
Time Location Activity
12 p.m – 5 p.m Host Hotel Lobby Check-In
12 p.m. – 7 p.m. Houston Zoo Zoo Outing
7 p.m. – 8:30 p.m. Great Ape Gallery Welcome Reception
Saturday, July 25
Time Location Activity
8:30 a.m. – 9:20 a.m. Pavilion (4th Floor) Opening General Session
9:30 a.m. – 10:20 a.m. Pavilion (4th Floor) Breakout Sessions
10:30 a.m. – 11:20 a.m. Pavilion (4th Floor) Breakout Sessions
11:30 a.m. – 12:20 p.m. Pavilion (4th Floor) Breakout Sessions
12:30 p.m. – 1:50 p.m. Pavilion (4th Floor) Lunch
2:00 p.m. – 2:50 p.m. Pavilion (4th Floor) Parent’s Panel Discussion
3:00 p.m. – 6:00 p.m. Children’s Museum Houston Group Outing
Dr. V. Reid Sutton
Keynote Speaker

Reid Sutton is a clinical geneticist and clinical biochemical geneticist at Baylor College of Medicine & Texas Children’s Hospital in Houston. Along with Dr. Janson White, Dr. Sutton developed the description of the spectrum of developmental and health issues in individuals with variants in the POGZ gene, that the Online Mendelian Inheritance in Man (OMIM) has designated “White-Sutton Syndrome”. Dr. Sutton will be delivering the Opening General Session address on Saturday Morning.

Amanda Couch
President, White Sutton Syndrome Foundation

Amanda is the co-founder of the White Sutton Syndrome Foundation and the mother of a child with White-Sutton syndrome. She will deliver the opening address at the Welcome Reception on Friday evening, as well as a session on Autism as it relates to WHSUS on Saturday. She will also contribute to the Parent’s Panel on Saturday afternoon.

Josh Couch
Creative Director, White Sutton Syndrome Foundation

Josh is both the Creative Director and Board Secretary for the White Sutton Syndrome Foundation, and the father of a child with White-Sutton syndrome. He will deliver a presentation on the White Sutton Syndrome medical registry on Saturday.

Renea Banks
Vice-President, White-Sutton Syndrome Foundation

Renea Banks is the co-founder and Vice-President of the White Sutton Syndrome Foundation, and the mother of a child with White-Sutton syndrome. She will deliver a presentation on Philanthropy on Saturday.

Angelo Banks
Treasurer, White Sutton Syndrome Foundation

Angelo is the White Sutton Syndrome Foundation Treasurer and the father of a child with White-Sutton syndrome. He will moderate the Parent’s Panel Discussion on Saturday afternoon.

Marjorie Hanft
Retired, Eastern Illinois University Psychology Dept.

Marjorie Hanft was a faculty member in the psychology department at Eastern Illinois University for 27 years during which she taught and served as coordinator of her department’s undergraduate internship program. Her daughter Rebekah was recently diagnosed with WHSUS at age 34. Marjorie will contribute to the Parent’s Panel on Saturday afternoon.

Melissa Gannaway
Financial Professional

Melissa Gannaway graduated from Texas A&M University with her Bachelors of Business Administration Degree in Finance. She is a wife and working mother of three amazing kids. Her youngest daughter has been diagnosed with White Sutton Syndrome. She is deeply motivated to help others and is passionate about making a difference in the lives of those affected by White Sutton Syndrome. Melissa will contribute to the Parent’s Panel on Saturday afternoon.

Houston Zoo Outing
( 34 Passes Left )

Those who are registered for the Opening Reception on Friday night will also receive passes to the Houston Zoo that can be claimed during check-in and used all day on July 24th. Our evening reception will also be held at the Zoo, in the Great Ape Gallery (labeled “F” on the map linked to below). If you’d like to plan your outing, you can download a zoo map here.

Children’s Museum Passes
( 12 Passes Left )

We have arranged passes to the Children’s Museum of Houston that can be claimed during check-in. We are planning a group outing to the Museum and we encourage groups to attend together and use this opportunity to grow relationships with other White-Sutton syndrome families.

Hilton Houston Plaza/Medical Center

We have arranged a block of discounted rooms for attendees at the Hilton Houston Plaza/Medical Center, directly across the street from the Women’s Pavilion. These rooms must be booked no later than July 2nd in order to qualify for the special rate. Just use the code “White Sutton Syndrome” when calling 1 (888) 225-9664 or book online below.
Book Your Room

Overflow Hotel

Just down the street from our host hotel is the SureStay Plus Hotel by Best Western Houston Medical Center. While we don’t have a special rate arranged with this facility, it is comparable in price to the Hilton and also offers complimentary breakfast.

Ride Metro Passes

The Houston MetroRail Red Line connects many of the White Sutton Together venues, and is the easiest way to get from place to place. We are working with Ride Metro to provide White Sutton Together attendees with fare cards to ride on Friday and Saturday. More details will be available in the coming months.

Traveling from Outside the US?

You can request a Visa Invitation Letter to support your visa application by emailing us once you’ve completed registration. The Visa Invitation Letter will be emailed after the requester has registered for this conference and the registration fee has been paid in full. Original Visa Invitation Letters cannot be mailed via Post/DHL/Airmail.

Thank You to Our Sponsors!