Rare Disease Genetic Testing Webinar

Many White Sutton families have already gone through the process of genetic testing for WHSUS, but many more are still only just beginning the process. Many are still out there looking for answers, and may come across during their search. If this is you, or if you’re interested in...
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Study Opportunity for White Sutton Families

We have recently been made aware that Dr. Sutton and one of his associates, Dr. Nurit Batzir, are looking for study participants for research into White Sutton Syndrome. They are especially interested in patients who have gastrointestinal and sleep issues. Below we have included the letter with more details. If...
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Genetics Home Reference: Updated!

After several weeks of working with the staff of the Genetics Home Reference, Dr. Reid Sutton today announced that its entry for White Sutton Syndrome has been published. After reading through the materials myself, I am blown away: this is must-read stuff! With so much of the last few years...
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Social Media Accounts are Live!

White Sutton Syndrome Foundation now has a presence on social media! You can join the WHSUS community on Facebook, Twitter and Instagram today! Look for regular updates, events and engage with others in the WHSUS community as we strive to grow these forums into useful, relevant tools for WHSUS families.

White Sutton Foundation Logo

Our logo is done! Thanks to everyone who has provided feedback. Here’s the backstory behind it’s several meanings. The brain represents the neurological delays most WHSUS patients experience. The brain is blue because many with WHSUS are also diagnosed with autism. The swing represents both the potential of those with...
Read More Work is Underway!

Our journey has begun! The domain is purchased and development has begun on Thank you to everyone who has offered words of encouragement, opinions, photos and more – it’s all coming together! Stay tuned for more in the coming weeks.

ATTENTION PARENTS: There's a new study opportunity available. Dismiss