We have gathered resources below that may be useful to those looking for answers about White Sutton Syndrome. None of these sites are affiliated with the White Sutton Syndrome Foundation, and the information and opinions expressed on these sites are not endorsed by us. All that said, we believe that the information available on these sites can be useful and informative, and hope you find them to be so.


Genetic Counseling

Ask A Geneticist


National Organization for Rare Disorders

Genetics 101

Member Organizations

WHSUS is a rare disease, and we have found that networking with other rare disease communities and organizations can help us with our mission. Below are organizations to which the White Sutton Syndrome Foundation belongs. Many of these groups also have programs to help patients – be sure to check them out!